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Hypoplastic Left Heart Syndrome cannot be cured--
but it can be repaired. 
     There are two treatment options:
     A heart transplant from a healthy, tissue-matched donor or
     A three-stage operation known as the Norwood Procedure, described below:
THE NORWOOD PROCEDURE
This intricate open-heart surgery takes place in three steps, known as staged palliation:
    1) The Norwood I Procedure, usually performed in the first 14 days of life, connects the aorta directly to the lower right chamber of the heart.
    2) The Norwood II Procedure (or Bidirectional Glenn Shunt) is performed when the baby is about 6 months old. The superior vena cava, which transports oxygen-poor blood from the upper body, is connected to the pulmonary artery.  The pulmonary artery can then carry this blood to the lungs.
3) The Norwood III Procedure (or Fenestrated Fontan) is performed between ages 1 and 3.  This procedure connects the inferior vena cava, which carries oxygen-poor blood from the lower body, to the pulmonary artery. 
    Between the second and third surgeries, Parker's treatment has been limited to a single baby aspirin a day and careful monitoring by her cardiologist.

 

  • Survival rates from the Norwood I Procedure are 80-85%.
  • Survival rates from the Norwood II Procedure are 98-100%
  • Survival rates from the Norwood III Procedure are 95-98%.
  • Five year survival rates are 70-75%.  Most patients do well with normal growth and development and few if any restrictions.